We did not expect her growth to fluctuate but it is part of the CDLS It’s difficult for the persons with this syndrome to gain weight to grow in height and to maintain weight. That being said she is doing great with her growth and weight and has gone up 2 lbs since
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FAQs:
CDLS (short for Cornelia De Lange) is a rare genetic disorder that affects the physical features of a person and can create complexities inside the body as well. This disorder is not passed down from the genetics of the parents and instead happens in the formation of the DNA of the baby in the early stages of the pregnancy. There are growth delays as well as intellectual delays. It is common for them to have limb differences.
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