Cystic fibrosis drug Trikafta helps most but not all with the deadly genetic disease

The cystic fibrosis drug Trikafta helps roughly 90 percent of people who have the deadly genetic disease. The drug enables patients to live a healthy life, start families, and think of a future. But for those left in the 10 percent, for whom Trikafta does not work, the daily struggles of living with a chronic, terminal illness continue. “Waiting for Hope, Fighting for Tomorrow” explores the lives of people at opposite ends of the spectrum: those who are benefiting from the drug, including young children who will escape much of the damage that CF causes, and those still waiting for their “miracle drug.” Full story: https://bit.ly/45Vk1Ob CHAPTERS: ---------------------------- 00:00 Introduction 01:09 What is Cystic Fibrosis? 01:58 A lengthy routine 02:36 Trikafta 07:52 Cystic Fibrosis in young children 10:53 A beacon of hope 12:23 The 10% still struggling 15:47 Emily's Entourage 18:03 Surrounded by loss 19:22 No cure 20:54 Fighting for a better tomorrow --------------------------- SUBSCRIBE TO OUR CHANNEL FOR MORE VIDEOS. https://www.youtube.com/@bostonglobe READ OUR JOURNALISM FROM NEW ENGLAND AND BEYOND. https://www.bostonglobe.com/ FOLLOW US ON: Facebook ► https://www.facebook.com/globe/ Twitter ► https://twitter.com/BostonGlobe Instagram ► https://www.instagram.com/bostonglobe TikTok ► https://www.tiktok.com/@bostonglobe