Say, “Hello” to Kyra (@have.endo.will.travel). She is sharing her experience with stage 4 endometriosis, chronic fatigue, mental health, and more!
Recommendations:
Advice: Keep a copy of everything (even if you can’t understand it) and keep as much information on yourself as you can (ex: track period or pain).
Phrasing to doctor: Is this something you can help me with or is it something I need to be referred for?
Journaling (aesthetically pleasing journals - links below)
Notebook: https://amzn.to/3MQeyAs
Pens: https://amzn.to/46gG01e or https://amzn.to/3uvhKer
Highlighters: https://amzn.to/47Dp7yJ
Stencil bookmark: https://amzn.to/3urHF76
Shower when feeling dysregulated - shower chair: https://amzn.to/3R6Ogwo
Stretches (even just in your bed).
Fresh air (even just on your porch).
Friend and family support.
Join the community of those with chronic health conditions online (social media).
Endo resource: Nancy’s Nook: https://nancysnookendo.com/
Book: How to Keep House While Drowning: https://amzn.to/3upagKd
You can check it out on Spotify as well: https://podcasters.spotify.com/pod/show/jesshay/episodes/Ep--8---Kyra-e2c5c23