At 9, Jayden Tan was diagnosed with PURA syndrome, a rare genetic condition (there are only 200+ known patients worldwide). Now 17, he is non-verbal, has developmental delay and needs help with daily tasks like eating.
His three sisters, aged 19, 16 and 14, share about what it's been like growing up with Jayden and the expectations of them as shared caregivers. They also respond to comments from viewers after their family's story was featured on #OnTheRedDot’s Undiagnosed series.
00:00 Life with a special needs sibling
02:16 Brother comforts his sisters
02:48 How to care for special needs brother
05:13 Future caregiving arrangements
07:26 Are sisters forced to be caregivers?
08:35 Do sisters of special needs kid feel overlooked?
10:50 Tips for siblings of a special needs child
11:25 Resources for caregivers
Got an idea for a story you think we should look into? Email [email protected]
Watch the 4-part series of Undiagnosed: https://www.youtube.com/watch?v=c1s4Vf1hKp4&t=517s&pp=ygUMdW5kaWFnbm9zZWQg
Also watch:
Life As An Adult With Special Needs: https://www.youtube.com/watch?v=WBDlA7jR5OQ
I Only Date Guys Who Accept My Autistic Sister: 27-Year-Old Caregiver: https://www.youtube.com/watch?v=wsluxdMXi0o&t=1s
How We Live With Autism: Our Special Needs & Strengths: https://www.youtube.com/watch?v=Dc5Czy6mGEw
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