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Interviewing Florentina (a PKU Adult)

E.S.PKU 489 lượt xem 3 weeks ago
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Watch an indepth interview of Florentina recorded at E.S.PKU 2024 in Porto.

Florentina is an adult with PKU from Croatia living in the Netherlands. She is a member of the Croatian PKU organisation.

Learn more about PKU and E.S.PKU at https://www.espku.org

00:00:00 - 00:00:49 Introduction
00:00:50 - 00:03:19 My PKU Story
00:03:20 - 00:07:01 Challenges with PKU
00:07:02 - 00:08:42 Being Social
00:08:43 - 00:10:26 Activities
00:10:27 - 00:13:18 PKU Diet
00:13:19 - 00:14:37 New Treatments
00:14:38 - 00:16:13 Life Lessons
00:16:14 - 00:17:14 My Advise
00:17:15 - 00:19:03 E.S.PKU Conference
00:19:04 - 00:20:21 Unmet Needs
00:20:22 - 00:21:20 Reimagining PKU

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