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Jimmy's Birth Story, This Wasn't an Easy One To Create

TRNT1 Dad 58,412 lượt xem 1 year ago
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#geneticdisorder #nicubaby #newborn

https://linktr.ee/handfamily

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Jimmy was born with a RARE genetic disorder/mutation of the TRNT1 gene. It's so rare it doesn't even have a name. This genetic mutation is a metabolic mutation that can effect him in a variety of ways from what we know. Anemia, developmental delays, immunology, and cardiomyopathy are just some of the potential risks. I'm hoping to keep track of his story and hopefully creat a platform for people who MAY have a child with the same genetic disorder. I know that number is most likely small seeing how rare his disorder is but even if you'd like to stick around just to follow his story, or to feel a sense of belonging if you also have another rare genetic mutation.

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