Katie Wright
VEDS (Vascular Ehlers-Danlos Syndrome) is a connective tissue disorder that causes arterial dissections and ruptures, organ ruptures, and other life-threatening emergencies.
On this channel I talk about my life with VEDS and community updates. I also share my podcast, Staying Connected, where I talk to other people affected by VEDS. To read more of my story or hear full episodes of the podcast, go to: translucentone.blog
I am part of the VEDS Collaborative, which is a group of stakeholders and researchers working together. I am also the Director of The VEDS Movement, a division of the Marfan Foundation.
The views, information or opinions in the blog, podcasts and vlogs are solely those of the individuals involved and do not represent the opinions of The Marfan Foundation. The Marfan Foundation is not responsible and does not verify for accuracy any of the information contained in them nor does the information constitute medical or other professional advice or services.
On this channel I talk about my life with VEDS and community updates. I also share my podcast, Staying Connected, where I talk to other people affected by VEDS. To read more of my story or hear full episodes of the podcast, go to: translucentone.blog
I am part of the VEDS Collaborative, which is a group of stakeholders and researchers working together. I am also the Director of The VEDS Movement, a division of the Marfan Foundation.
The views, information or opinions in the blog, podcasts and vlogs are solely those of the individuals involved and do not represent the opinions of The Marfan Foundation. The Marfan Foundation is not responsible and does not verify for accuracy any of the information contained in them nor does the information constitute medical or other professional advice or services.