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EDS & Why We Misunderstand Disability

Ember Green 49,093 lượt xem 1 year ago
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Why did it take me so long to realize I'm disabled? How I fell for the propaganda.

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I'm autistic & didn't know it until I was 32, I have Hypermobile Ehlers Danlos Syndrome & didn't know it until I was 36. Both of these are lifelong disabilities, so why didn't I know I was disabled for so long? Why was I so wrong about disability?

Discussing the trauma & medical gaslighting that can occur for EDS sufferers, why did doctors fail for so long to take me seriously? Why did I fail for so long to take myself seriously? Ehlers Danlos Syndromes and other hypermobility conditions can appear heterogeneous & can manifest in different ways. I explore my experience & tell my story of discovering & coming to terms with my new diagnoses. From hyper-mobile joints, to digestive issues, to chronic pain & fatigue, how could i have so much wrong with me for so long & not even realize?

Thanks to Caelan Conrad for the set design!

Sources: https://docs.google.com/document/d/1sqTiY0QfRyBrsszgTGvwQSdenEbIa3S4Usn0xkhtaIc/edit?usp=sharing

News Theme 1 by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/
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